NeuroblastomaJournal

February 28th Bad News.

We had been home from our first family holiday to Montreal for two days. The holiday was a disaster as Mumma was sick and Dominique became very ill with the flu and went to the emergency two times in Malbaie. They diagnosed her with an ear infection and she was on antibiotics. On this date, […]

March 4th Our first visit at the oncology clinic.

Our first appointment in the Oncology Department at Children’s Hospital was at 10:45am. First impressions of the clinic were heartbreaking. Babies Dominique’s age hooked up to their Chemotherapy treatments with bald scalps. They took Dominique’s blood pressure, weight and temperature and we chatted with Ravina, Dr. Bond (Oncologist) and Surgeon Dr. Mark Macculough. Dr. Macculough […]

March 5th Bone Marrow Test Day

A nerve wracking day to say the least. It started with a nurse attempting to put an intravenous in Dominique’s foot which was nearly impossible due to her chubby hands and feet. They put hot diapers around her hand and feet to try and raise a vein. The intravenous was successful, but Dom was not […]

March 6th CT Scan Day

The stressful part of this day was knowing that we would be meeting with the surgeons following the scan to find out more details about the tumor and the possibility of it being removed (best case scenario). We waited and waited for Dom’s scan as they were running about 45 mins behind. Dom had to […]

March 7th Biopsy Day

We were instructed to be at the hospital at 10:20am. Poor Dom had to fast again and hadn’t had anything to eat since 4 am when she had a small bottle. Running behind schedule, it wasn’t until 12:45pm when we handed Dom over to the nurse for sugery and she was definitely hungry. I could […]

March 8th One day after Biopsy

I didn’t sleep well without little Dominique at home. I kept having knee jerk dreams where I would suddenly awake and think “oh my god, Dominique has cancer and is in ICU right now”. I guess that’s the body’s way of absorbing the shock. At 6am I was getting antsy to get to the hospital. […]

March 9th Quick Visit

At 3pm we went to the hospital to have some of Dom’s bandages removed and have her central line flushed. It was a quick visit which was nice considering we have appointments for more tests all next week. Time spent in the hospital on that day: 1 hour

March 10th Quick Visit #2

Another quick visit to have Dominique’s central line “hep locked” or flushed”. It was nice to get out fast especially considering our busy week ahead. Time spent in the hospital on that day: 30 minutes!

March 11th CVC training and MIGB Injection

We made arrangements to go to Oncology to receive some training on how to do all the maintenance for Dom’s CVC line. This is seeming like a really big deal…too big of a deal. After we went to Nuclear Medicine so Dom could get an MIGB injection into her CVC. This radioactive substance is attracted […]

March 12th MIBG scan #1 & 2nd attempt at CVC training

We followed the technician’s advice and brought a tired child to the lab. From the moment Dominique was restrained and saw the big monster machine rotate around her and come down her in a crushing motion she cried, and cried like we’ve never heard her terrorized and traumatized. When she finally did doze off after […]

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