Category: NeuroblastomaJournal

July 18th The grapefruit is gone!

Dominique was a little angel all morning before her surgery.  Even though she ended up fasting since 9PM the night before because she wasn’t interested in any applejuice or water in the morning.  The surgery was on time (thank God).  I suited up and mentally prepared myself to bring Dominique into the operating room to…

July 17th Set for tomorrow!

The surgery is set for 11:40am and we need to check into the hospital at 10:10am.  The surgery is expected to take approximately 2 hours. I will do a quick update on Dominique Thursday night.  Positive thoughts and prayers are very much appreciated. Time spent in the hospital on that day: 0

July Check up

Dominique had blood work today and a small check-up to make sure she’s ok for surgery.  Her blood counts are really high- (they are amazing) and she has gained a half a kilo since she finished chemo and now weighs 11 kg. Tomorrow we will find out the actual time of the surgery.  And as far…

July 15th Anxiously awaiting…

Pretty much two more days until the big surgery day…and two more days of maintenance on her CVC (Central line in her chest).  We have to take Dominique to the clinic tomorrow to get some blood work done before the surgery.  We still don’t know the actual time of the surgery and will most likely…

July 11th Surgery booked for July 18th!

We met with Dr. Skarsgard Dominique’s Surgeon.  He said the CT scan looks “fantastic” and that the remaining tumor/scar tissue is in a good location for resection.  The surgery is booked for next Thursday July 18th (we don’t know the exact time yet). The surgery itself will take approximately 2 hours.  Dr. Skarsgard believes that he may be…

July 8th Surgeon’s consultation

We received a call from Dr. Skarsgard’s office (the surgeon) today requesting we come for an appointment on Thursday at 10:15am for a consultation. On this date we will most likely discuss the CT scan and possibility of removing the remaining tumor. Dominique continues to do well.  I think some of her hair is starting to grow back…

July 5th No news yet…

It has been a week since Dominique had her CT scan.  Dr. Bond has confirmed that the tumour has shrunk substantially but we are awaiting the opinion of the surgeon to see whether the remaining tumor can be removed.  Dr Bond has been on holidays this week so we will make an appointment with him for…

June 25th CT scan appointment

Finally, we have found our time and date for Dominique’s CT scan.  Friday, June 28th at 1:30pm.  We’ll have to be at the hospital at 12:15 and Dominique will have to fast because she will be asleep under anaesthetic for the procedure.  She can’t eat any solids after midnight the night before.  She is allowed…

June 24th Some improvement

Dominique’s blood test today reveal that things are slowly getting back to normal.  In other words, her blood counts continue to climb.  Dominique is getting two more teeth up top and this could account for some of her crankiness lately and lack of appetite the last few days.  I’ve noticed that more  (what little is…

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